Your Weekly Action Scripts

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I was talking on Facebook with some friends yesterday about the fact that the cost/benefit of calling my congresspeople just isn’t worth it for me. I could do it, but it would sap all my energy. I asked for ideas of other things I could do to help, and one of my friends made a great suggestion: write scripts for others who can call. Now THIS I can do! So I’m making it my mission this year (and possibly throughout the entire Trump administration) to identify one issue a week and write scripts for you to contact your Congresspeople, the White House, and any other relevant parties. I’m also going to include some pre-written tweets, so that if you have a Twitter account you can tweet at your representatives.

All of these scripts should be adaptable for letter writing, although if you are planning to write a letter I would urge you to include something personal in your letter as it gets more attention if it’s a unique letter. Apparently postcards also get through more quickly than actual letters due to the anthrax scare, so keep that in mind.

This week I’d like to focus on disability issues, as I complained enough about them not getting enough attention in my last post. There are three main concerns that I have right now in regards to the disability community. I would recommend calling your representatives over the course of a couple days and each day using one of these scripts.

Issue One: Repealing the ACA

Why this is important: Trump and a variety of GOP lawmakers have vowed to repeal the ACA. This is of particular concern to the disability community because the ACA made it illegal to deny someone health insurance based on a preexisting condition. For those with disabilities, this made health care a possibility where it had not been.

Calling script for your Senate and House representative: “Hello, my name is ___ and I am your constituent from [location and zip]. I’d like to speak with the individual in your office who handles calls concerning the ACA.”

They will either transfer you or say that they can help you out. If they do not transfer you, ask for the name of the individual who handles calls concerning the ACA. You can use this name in future calls. Then proceed with the script: “Thank you. I’m calling to urge Senator/Representative _______ to oppose any attempts to repeal the ACA. The ACA made it illegal for insurers to refuse someone based on preexisting conditions. This allowed thousands of Americans with disabilities to finally access important, life saving care, and I urge Senator/Representative _____ to remember those Americans when the time comes to vote on the ACA, and ensure that insurers are not allowed to deny Americans based on preexisting conditions.”

The staff member will likely thank you and may ask if you want a response from the representative. You can say yes or no. They may also take your full name, phone number, and address. There’s a possibility they will tell you that the representative will not do what you’ve asked. If so, you can simply say “I will call again tomorrow. Thank you.”

Calling Script for the White House: This one is a little bit tricky. The main White House comment line (202-456-1111) appears to be closed. You can try it, but it appears to suggest that you use Facebook or the comment form on their website. Teen Vogue (the unexpected head of the resistence) has put together a useful article on contacting Trump’s businesses, as this appears to be the quickest way to actually reach the president. A strong note: please do not harass anyone working for Trump’s businesses. Remain polite.

“Hello, my name is ___ and I am calling to leave feedback for President Trump. As his White House comment line is closed, I am choosing to contact him through his business holdings.”

The person you’re talking to might be confused. They may try to ask you to make a reservation for a tee time or a hotel. If that happens, you can ask for a supervisor and repeat the above line. If they say that that’s not appropriate, simply say “please pass along my comment to your higher ups. I would like my President to receive my feedback. I will not take much of your time.” If they listen, use the following script.

“I am an American citizen, and I am calling to urge President Trump to cease his efforts to repeal the ACA. The ACA made it illegal for insurers to refuse someone based on preexisting conditions. This allowed thousands of Americans with disabilities to finally access important, life saving care, and I urge President Trump to veto any legislation that would allow preexisting conditions to return. Thank you for your time.”

Tweet for senators: @[your senator or representative] vote against repealing ACA. Preexisting conditions make it impossible for disabled Americans to get coverage!

Tweet for White House: @potus do not repeal ACA! Denial of insurance based on preexisting conditions kills disabled Americans.

Issue Two: Betsy DeVos as Secretary of Education

Why this is an issue: Betsy DeVos is a problem for a wide range of reasons, but the ones I’d like to focus on are the fact that she did not know what IDEA was when asked during her hearing, and is very focused on school choice and deregulation. IDEA is the legislation that protects disabled students and gives them access to accommodations in their education. Her focus on deregulation is likely to remove many of the protections for disabled students, which are already underfunded and weak. This would likely leave disabled students with little to no support, or put away in separate schools that are not held to the same educational standards as other schools.

Calling script for your Senate and House representative: “Hello, my name is ___ and I am your constituent from [location and zip]. I’d like to speak with the individual in your office who handles education.”

They will either transfer you or say that they can help you out. If they do not transfer you, ask for the name of the individual who handles calls concerning the education. You can use this name in future calls. Then proceed with the script: “Thank you. I’m calling to urge Senator/Representative _______ to oppose Betsy DeVos as Secretary of Education. Ms. DeVos showed during her hearing that she did not know the basics of IDEA, a key piece of legislating protecting disabled students. She has also urged for deregulation of schools, which would further undermine supports for disabled students. This is disastrous for any students who require accommodations and supports to succeed in school, and will put future Americans with disabilities at a disadvantage in employment, life skills, and higher education. Please ensure all students have access to a free public education by opposing Betsy DeVos and demanding support and funding for IDEA.”

The staff member will likely thank you and may ask if you want a response from the representative. You can say yes or no. They may also take your full name, phone number, and address. There’s a possibility they will tell you that the representative will not do what you’ve asked. If so, you can simply say “I will call again tomorrow. Thank you.”

Calling Script for the White House: see above for notes on contacting the White House.

“I am an American citizen, and I am calling to urge President Trump to rethink his decision of Betsy DeVos as Secretary of Education. Ms. DeVos showed during her hearing that she did not know the basics of IDEA, a key piece of legislating protecting disabled students. She has also urged for deregulation of schools, which would further undermine supports for disabled students. This is disastrous for any students who require accommodations and supports to succeed in school, and will put future Americans with disabilities at a disadvantage in employment, life skills, and higher education. Please encourage President Trump to ensure all students have access to a free public education by finding a different Secretary of Education who will support and fund IDEA.Thank you for your time.”

Tweets for Senator/Representative: I would recommend looking up whether your representative has come out in opposition to Betsy DeVos and select the appropriate Tweet.

For those who oppose: @[your representative or senator] thank you for opposing Betsy DeVos. She is wholly inappropriate for Sec. of Ed and will do harm to all students esp disabled ones

For those who do not oppose: @[your representative or senator] please oppose Betsy DeVos as Sec of Ed. She does not know what IDEA is. We need support for disabled students.

Tweet for POTUS: @potus Betsy DeVos is an inappropriate choice for Sec of Ed. She does not know what IDEA is. We need support for disabled students.

 

Issue Three: removal of all mentions of disability from WhiteHouse.gov

Why this is an issue: it’s fairly normal for an administration to change up the website when they move in, but what isn’t normal is for entire issues to be removed entirely. President Trump has replaced any mention of disability with issues like “America First policies”, because apparently Americans with disabilities aren’t important enough to be on his docket of issues.

For this one, all communications should go to the White House. See above for notes on calling the White House.

Script for White House: “I am calling to urge President Trump to add disability issues to whitehouse.gov. All mention of disability issues was removed when he entered office, erasing the concerns of millions of Americans. Please encourage President Trump to remember these Americans and fight for their rights. Thank you for your time.”

For the White House FB Page and White House comment page: I am deeply concerned that President Trump has removed disabilities from the list of issues on Whitehouse.gov. Americans with disabilities make up 19% of the population, and in the past have experienced serious discrimination, oppression, and abuse. Please return disability issues to the table and include them on whitehouse.gov. Disabled Americans deserve the support of their president, not someone who will erase them from the conversation.

NOTE: you can find the comment page here, and the FB page here. Feel free to adapt and expand this for a postcard.

Tweet for the White House: @POTUS I am appalled that you have removed all mention of disabilities from whitehouse.gov. Disabled Americans cannot be erased.

Look forward to next week’s scripts on Sunday. I hope to tackle some immigration issues. Together we can make our voices heard.

Autism Speaks is No Longer Searching for a Cure: Here’s Why That Gives Me Hope

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Note: This is my personal view. It does not represent the views of any organizations with which I am affiliated.

Autism Speaks, the largest charity organization associated with autism in the U.S., announced this week that they would no longer be seeking a cure for autism. For those outside of the autism community, many autistic self-advocates have long been decrying Speaks’ push to find a cure, saying that the money should be spent on actual services for actual people, and that the “cure” language says their lives are not worth living. Especially within the neurodiversity paradigm, autistics understand that their brains cannot simply be rid of autism and still exist as their brains. Autism in inextricably linked with many people’s identities. So speaking of a cure felt like an attack on their selfhood. It said that because autistic brains are different, they are bad and should be eradicated, despite the fact that many autistics were loudly saying they did not want to be changed, they wanted support, understanding, accessibility, and opportunities.

Speaks has made many, many, MANY other missteps. Their unending focus on parents rather than people who are actually autistic, this horrific ad, the lack of actually autistic people on their board or in high up positions in the organization, the language they used around autism (epidemic, burden, etc.). It all adds up to a big ol’ pile of shit, and I have yet to meet someone who is autistic who hasn’t just said “fuck Autism Speaks, I’m out.”

So this rolling back of the “cure” language is too little too late for most people I know. I understand. It is a pretty pathetic attempt to win back the people you supposedly serve. I know a lot of people who are saying it doesn’t actually much, and that there is still absolutely no way that they will support Autism Speaks (especially without any apologies for previous mistakes). I am completely sympathetic to this viewpoint, and I also am not particularly interested in supporting Speaks.

But what makes me hopeful about this is not actually Speaks. What makes me helpful is that there have been YEARS of self advocates pushing for this change, without much response. It took years before people outside the deep neurodiversity community began to notice and understand the problems with Autism Speaks. So it gives me hope that finally, FINALLY people are listening. FINALLY the voices of autistic people were loud enough that the largest autism organization in the country felt the need to change. It may be a nominal change, with little in the way of actual money being moved to helping people, but we were loud enough that they couldn’t ignore us any more. They felt that there was enough pressure that they HAD to do something.

What this says to me is that we are growing more organized and more powerful. People are starting to take note. We have found some of the correct channels to reach the people who are most misguided. I am hearing more and more rhetoric that recognizes the value of disabled and autistic people.

It’s a baby step. It does not fix the past harms. We still have such a long way to go before people have the services, respect, and fulfilled lives that they deserve. But I see it as confirmation that we, the self-advocates, are doing what we should. I see it as a big old gold star that says “keep on keeping on. Change is possible.”

I want all of us to stop and recognize that for ourselves. We did this. It is small, but Speaks is fucking huge, and we made them budge. Oftentimes that first movement is the hardest. We can do this.